Me, Myself and I...

words by Morgaine Swann posted November 9, 2005 - 4:44am

Since the topic of this month is Relationships, and I'm going through something that is making it difficult for me to post as often as I should, I decided just to talk about it here. I'm struggling with my relationship to myself. When I became disabled about 15 years ago (can it possibly be that long?!) I spent a lot of time in anger and denial. I tried anything I could to make it not true, or at least find a way to function in spite of it. It didn't work.

I lost my independence, my life on the East Coast, a house full of furniture and belongings and my friends. I'd like to say I weathered it all gracefully, but alas, I did not. Once I had to admit that I couldn't live alone anymore, I shut down completely. I moved in with family, and pretty much slept for about 2 1/2 years or so. Gradually, they invented better medications and I found a little inspiration in something harmless, and gradually started coming back to life.

Right now, I'm going through one of the best periods I've had since it started. It won't last long, I know, and I'm trying to make the most of it. As soon as this Indian Summer we're having begins to fade, my Seasonal Affective Disorder will kick in and I'll be bedridden for the rest of the winter. At that point, I'll be on the net almost every waking minute. I've discovered that my time on the web is in inverse proportion to how good I feel. Sort of.

Depression is a strange thing. It happens in levels. When I'm at, say a -2 to 0 level of depression, I'm busy. I paint, I write, I clean my room, I read books, I lay in the sun or float in the pool - my good spells tend to happen in Spring and Summer - but I have trouble keeping up with the on line world. At levels -3 to -8, I'm on line constantly because I really can't do anything but lie in bed. A minus -9 or -10 knocks me back off the net again, which is why people start to worry if I'm away too much. I had a spell this spring that lasted almost two months. That was a bad one. People were posting on my blog to see if I was alive. I wasn't.

Anyway, right now I'm almost functional. That means I sleep some almost every day, I'm awake for at least a few day light hours, and I'm able to do some basic things like clean, paint, and cook. I don't have these spells very often, so I have to "make hay while the sun shines." So that's why I haven't been around much. I'm like a squirrel gathering nuts for the winter. I'm getting my room organized so it won't be too horrible when I go months doing nothing. I'm collecting art books and art supplies that I can use in bed, so hopefully I'll do a little something other than cruise the net. That's a bit optimistic, but that's how I feel right now.

Right now, I don't hate myself for failing to be functional. Right now, I don't hate the world for the way it reacts to parts of me I can't or won't do anything about - my height, my looks, my ethnicity, my religion, my attitudes and ideas. I'm ok with the fact that all of my friends live somewhere else. I'm ok with the fact that no one I live with gives a shit about anything I care about, and they talk to me half the time like I'm an animal or a child. I'm ok with the isolation of living way up in the mountains. I don't live in the middle of nowhere. I have to drive 3 hours to get to the middle of nowhere. There are times when that's stifling, but right now it's a relief. I don't want to deal with people. I want to deal with me.

When I dig down below the depression, I like myself. I like the way I think, the way I write. I like my beliefs and attitudes because I worked and still work hard to refine and develop them. Most of my obstacles are external - distance, the way people perceive me in this culture, lack of money, lack of connections, lack of energy to do things when I do have the opportunity. But right now, tonight, I'm ok, so I might not be around much. Don't worry if I occasionally wander off. I always wander back sooner or later.

Namaste.


Comment by Pythia posted November 9, 2005 - 8:21am

Dear Morgaine,

Thanks for your brave and honest post. When you were talking about painting in bed, I thought of Frieda Kahlo. She had several serious accidents and illnesses in her life and would paint in bed. In fact, a serious train accident she was in at 17 kept her bedridden. She started painting to pass time. Maybe you can take some inspiration from her (if you haven't already.) :-)

BB,
Pythia

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Comment by Morgaine Swann posted November 9, 2005 - 10:47pm

I'm so psyched that you posted that because I've been into Frida since I saw the movie a while back. I bought the book about the making of it, the film itself, and I've been reading a lot about her. I even bought a couple of books about Mexican use of color in decorating. I was an exchange student in Mexico when I was 16 and it was a profound experience, though not entirely positive. It was when I separated the real me from the person everyone else wanted me to be. Iloved Mexico - as fussy as I am, nothing bothered me there. The fruit tasted sweeter, the water was clearer, the people had such music in their lives and were so kind.

Frida was able to create such powerful statements about her life and her pain. I'm definitely trying to find my own way to express what I feel. Thanks for giving me an affirmation that I'm on the right track.

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bayprairie's picture
Comment by bayprairie posted November 10, 2005 - 4:21am

the fruit is sweeter, i love the tiny limes, the giant poinsettas

and the bee hives,

not white like here

yellow and rose and turquoise and green...


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Comment by scribe posted November 9, 2005 - 9:07am

...we end up on the life paths we do. And how easy it is for others to "judge" journeys they have never traveled themselves.

You describe a path it would be easy for people to misunderstand. But I hear the voice of a very powerful spirit, who has chosed to use well, and to savor "what is", in present moments.

As for those who do not, or can not "know us" as we are, well, this is a loss for them. One can hope that the day will come when more can understand that not all of the brightest spirits come dressed in designer clothes.

Thank you for your diary.

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Comment by Morgaine Swann posted November 9, 2005 - 10:50pm

for your kind words. They mean more than I can say.

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artemisia's picture
Comment by artemisia posted November 9, 2005 - 7:45pm

have you ever tried one of those light boxes for the season affect thing. my doctor wants me to get one, but i'm wondering if they actually help. they seem so gimmicky to me.


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Comment by Morgaine Swann posted November 9, 2005 - 10:58pm

because they're cheaper and they do seem to make a difference. I just can't get myself to spend a hundred dollars on one yet. A friend of mine has begged me to get one. Her view is that if I needed a hundred dollar item for my computer, I'd buy it, so why not invest that in my brain - the biggest computer I have. She has a point, but I just haven't done it yet.

I will tell you that I have no doubt that they work. I've done research on the subject and how light affects mood and sleep because of my depression and sleep disorder. Even more important than full spectrum light is that you avoid flourescent lights. They are extremely harmful, even for healthy people. I can't believe they use them in schools - they increase anger and hyperactivity, and can create anxiety where none existed. We really shouldn't be exposing our kids to them at such a developmental stage.

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Comment by scribe posted November 10, 2005 - 7:55am

I bought mine, a desk model..about 200 bucks, four years ago. I have SAD also, bed enough to make getting through Minnesota winters a real challenge. Within 10 days of using it only 20 minutes day, thre results were unmistakable and such a relirf. I jsut put it near while I'm on the computer in the morning,,15 inches away or so. I ordered mine online from the Sunbox company.
scribe

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bayprairie's picture
Comment by bayprairie posted November 11, 2005 - 4:14am

well then, i hope to see (and read :) you often, online here at our word, but not too much, no, not all day.

unless that fits your need.

yes?


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Comment by Morgaine Swann posted November 11, 2005 - 11:05pm

I just needed to explain why I'm around so sporadically. I'm sure at some point, you'll be sick of me - ha ha!

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